My name is
Jinwei Wu, male, born 12/2/1970. I started having asthma issue since
2016 and have been using an inhaler called BREO for treatment. While my
asthma got better I started to experience difficulty in speaking, which I
thought was a side effect caused by steroid from BREO. Later on,
however, I felt weakness in my neck, right hand and right leg, along
with obvious weight loss. After taking a few exams including EMG, MRI,
etc, in May 2018 I was diagnosed Amyotrophic Lateral Sclerosis (ALS), a
specific disease which causes the death of neurons controlling voluntary
muscles - the same disease Stephen Hawking had. Due to difficulty
moving around, I started working from home since June this year.
Eventually, with the progression of the disease, I had to leave my job
and went on disability leave since the end of September.
Currently I am under treatment at Johns Hopkins ALS Clinic. The
increasing medical costs has become a financial burden that is too much
for me and my family. Other costs also fell on us including hiring
people who can take care of me full-time, as the progressive muscle
weakness all over my body has forced me on feeding tube and wheelchair.
As a Christian, I am using everyday God gives me to study his words,
sharing my thoughts and feelings from God with my brothers and sisters,
and entirely devoting myself to the Lord for his use.
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